We wanted to hear from people with long term conditions about their experience of managing their condition and using services.
The survey: Over 665 people completed the survey, although not everyone answered every question. Respondents have a wide range of long-term conditions and around three quarters of you have more than one long-term condition.
The survey asked about:
The focus groups: 24 people attended the focus groups, including five carers. All of the attendees were aged 35 plus and the majority had more than one long term condition.
The common themes across the focus groups were:
Please download the results summary below for more detail about what people told us and the conclusions we’ve made.
We wanted to hear from people about their experiences of managing a long-term health condition, such as diabetes, stroke, heart failure and respiratory conditions, or any kind of physical condition that has an impact on how they live their daily life.
There were two parts to the work:
The work was developed by the East Sussex Better Together partners (East Sussex County Council and the Clinical Commissioning Groups for Eastbourne, Hailsham & Seaford, and Hastings & Rother) and High Weald Lewes Havens Clinical Commissioning Group.
Thank you to everyone who took the time to complete the survey or attend a focus group.
What people told us across the focus groups and survey will help us to plan services that empower people to manage their long-term conditions. We are now working on the recommendations that will form the next stage of this project.
More information on the recommendations and next steps will be published on the East Sussex Better Together website later this year. An easy way to keep up with developments is to register for our monthly e-newsletter. You can do this at our website or by emailing us esbt@eastsussex.gov.uk
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